Purpose & Goals
GRADSA’s Medical Outreach Committee is dedicated to providing Doctors with best practice guidelines when delivering the Down Syndrome diagnosis. We ultimately want to improve the diagnosis experience for families by improving the communication about Down Syndrome. We have provided nationally recommended resources to be given to the parents and are ready to support them. The Medical Outreach Committee is trained, certified and available for their Down Syndrome journey.
- Certified and Trained Medical Outreach Representatives
- Build relationships of trust and respect between providers and the Down Syndrome community
- Provide presentations and up-to-date information on Down Syndrome to medical staff
- Provide books, brochures and information packets for new diagnosis
- Act as an organization
- Report quarterly log to Lettercase
- Deliver Welcome Baskets to new families
How we support our families and providers! (↓↓↓)
RESOURCES FOR MEDICAL PROFESSIONALS – Free online learning modules from the University of Kentucky’s Human Development Institute
- Best Practices for Communicating a Prenatal Diagnosis of Down Syndrome
- Best Practices for Communicating a Post-Natal Diagnosis
- Prenatal Diagnosis Experience and Long-Term Patient Outcomes with Accurate, Up-To-Date, and Balanced Information about Genetic Conditions
- Prenatal Guidelines Update
- “Health Supervision for Children and Adolescents With Down Syndrome,” published in the May 2022 Pediatrics.
Renea is a stay-at-home mom of 4 children: Mason (16), Luke (14), Chapel (12), and Chaney (8). Prior to being at home Renea worked in the medical field for over 23 years. Renea and her husband Jonathan have both served on the GRADSA board and the Buddy Walk committee for many years.